A boy with aniridia served as the mascot of the England rugby team at their game with South Africa. He proudly led the team out on to the pitch at Twickenham today.
Finlay’s godparent moninated him following a call by the sponsor British Airways for 5-12 year olds who are keen rugby fans. He wrote:
Finlay is a bright, fun, energetic and courageous little boy.
What makes Fin a British Original is his sheer determination to live life like any other child despite his reduced vision. He loves sport and plays football every weekend and has even learnt to surf and ski with his mum and dad.
For me, a British Original is about never giving up on your hopes and dreams and he shows us all, day in and day out, that anything is possible.
Finlay is 7, lives in London and has aniridia, which incudes: foveal hypoplasia, nystagmus and photophobia. He was ‘buzzing, over moon about what was a very special day’
His dad Simon is behind an amazing inititaive to find drug treatment for some of the symptons of aniridia. Here is his presentation at the 5th European Aniridia Conference.